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Help Us Build the Database
We invite researchers, physicians, data scientists, legal professionals, patient organizations, universities and civil-society organizations to collaborate in building an international, transparent and accessible database.
Ways to collaborate
Research
Researchers & universities
Help design the data structure, review methodology, and study anonymous aggregated data under a data-use agreement.
Clinical
Physicians & clinicians
Review medical information for accuracy and help people find appropriate care.
Technology
Data scientists & engineers
Privacy-preserving data pipelines, anonymization, dashboards and research-matching tools.
Community
Patient organizations
Bring reports from your community into one structured, international database.
Legal
Legal professionals
Legal information for users, and guidance on data protection and consent.
Civil society
NGOs & foundations
Support an independent, transparent and accessible evidence base.